The Fight will go on

I thought I would share this video with you-it was filmed in January 2010 at The Gathering, in Prestatyn. Andrew had seen his consultant the previous October who had confirmed what Andrew already knew - that he had MND- he gave Andrew 12 months to live. Andrew was guitar teching for Mike Peter`s from The Alarm at the time.
Mike, who having survived leukemia twice sang this song at the end of his concert inviting his local G.P. and consultant on stage [ that`s two guys on the left-the consultant is playing a red guitar ] he also asked Andrew to join them.
Andrew is on the extreme right with a white t-shirt on-plugging in the guitars at the beginning ,
Ann, Tim, Ned, Jonathan,Lucy and myself were there on the night clutching a home made banner-written on it was- we- love -Andy !! Our hearts were breaking- Ann and I- we cried and sang along and waved that banner and supported him all the way.
There have been so many wonderful tributes left on Andrew`s facebook wall -a lot from the people who worked along side him-some made me laugh and some made me cry-some with pictures I had never seen before-he looked happy -I know he use to say how much he loved his job and I know that some of his happiest times had been on tour with the Alarm.
Thank you for all the wonderful comments and messages of condolences -everyone has been so very kind -we have appreciated and read them all. One comment that has stuck in my mind ..... .. he was truly courageous man who lived a life completed early rather than a life cut short.

The fight to raise awareness carries on -I still have bands to sell.

Andrew - 7th Jan 1953 - 1 st December 2011

Andrew lost his very brave and courageous battle with MND this evening
I`am so very proud and privileged to have been your sister- Thank you for putting up with me and for giving us the family so many happy wonderful memories ! Rest in peace dear bro, we love and will always love you very much xx

Natalie Barclays Tandem Skydive

Back in July you might remember -I wrote a post about one very brave young lady -Natalie Barclay [ pictured above on the left -with her mum and nan ] who had just completed a 12,000 foot tandem sky dive jump at The Headcorn Paracute Club in Kent. Natalie raised a staggering £620 for the Motor Neurone Disease Association and says she loved every moment of it -saying I can`t wait to do it all again !!
So , if anyone out there is thinking about doing some fundraising of their own and fancy giving skydiving a go -take a look at Natalie`s video below which I have just discovered on facebook.
Natalie smiled and waved all the way down [ I`d have just screamed and sobbed -I`m such a coward ] It certainly looked like she took it all in her stride and enjoyed every moment- thats for sure !! [ she was also strapped to a rather handsome instructor- hmm bet that helped too eh Nat ? ] It did look a fabulous experience though Natalie-one you will never forget ! Well done x
Hmm ? Do they do those jumpsuits in pink ?

Welsh Love Song - Lisa Lân - a capella harmony

This is a tragic Welsh love song from the beautiful Island of Angelsey , situated off the North West Coast of Wales [ it`s Welsh name being- Ynys
Mon. ] It`s just under an hours drive from where I live [ about 45 miles away ] Most of you might also recall it is where Prince William and his bride Kate [ or the Duke and Duchess of Cambridge as they are now known as ] are stationed in RAF Valley there.
Singing in this Video are - Geraint , Merfyn and Dafydd who are a trio calling themselves "Canig " They also sing in a choir called Cantorion Colin Jones -the web site is well worth a visit !
During the Cantorion Colin Jones tour to France in July 2008, aware that John [ see second video below ] a member of the choir, and brother of another member, were slowly succumbing to MND , choristers were moved to discuss methods of raising money for the M.N.D.A.

One idea was to record a c/d of the Cantorion Colin Jones Soloists.
John Puw was one of these soloists. Please scroll down.

John Puw yn canu Arafa Don / John Puw, a Welsh Tenor

This is John Puw who was diagnosed with MND in 2007-he found music to be a wonderful healer,and gained enormous strength from singing in this great choir-it`s lovely to think his singing lives on. I hope you enjoy the video`s as much as I did !

Please remember to support our awareness campaign by purchasing a band-the donate button is situated on the right hand side of the page by our fundraising thermometer.
If you have a story to tell or are fundraising or would like a dedication doing please let me know -send in a picture wearing your band and I will be delighted to give you a mention !

Motor Neurone Disease Awareness Bands

Motor Neurone Disease Awareness Bands £2.50 each- help " Support The Fight Against MND "

To donate and buy a band please scroll down to the " Donate" button on the right hand side of the page.Thank you.

THE MOTOR NEURONE DISEASE ASSOCIATION

Is the only organization in England ,Wales and Northern Ireland working for people with MND and their families.
Gives emotional,practical and financial support to people with MND and their families.
Provides specialised equipment to make life easier for people with MND.
Funds and promotes vital research to bring about an end of MND.
Relies almost entirely on voluntary donations.

£3,000 funds an MND expert researcher for one month and keeps the hope of a cure alive


£50.00 funds laboratory equipment for a day`s vital research into finding a cure for MND.
Every little bit helps.

Hair raising charity event ! [ or should that be removal ?]

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May be this is just my sense of humour but it did make me giggle -The lengths some people will go to ......especially to raise funds for the Motor Neurone Disease Association-This guy Mark Cocker deserves a medal for gallantry-I can almost feel his pain - If I wasn`t laughing so much !!
Sorry Mark .
Please excuse the odd expletive-Well now ? Any family members willing to give it a go ?
Hubby has just said yes - ok !! [ he has around 3 hairs on his chest !! ] Tut and eye roll very brave of him .........Not....... Hmm ?
John ?