Fighting Progressive Bulbar Palsy
A type of Lou Gehrig's Disease.
MND - Motor Neurone Disease
Saturday, 24 September 2011
Recording Alistair The Optimist
This is a video of a recording session for Alistair the Optimist`s album 2011 at Woolley Valley , in Somerset .The track is " Metal Men " and features Kathryn Calder [The New Pornographers ] on backing vocals.
Sunday, 18 September 2011
Good luck to Pete and Cecilia and keep the photographs coming !
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who was diagnosed with MND in February 2007- sadly Steve lost his battle with the illness in November 2008. Since then Pete with the help of his family and friends has thrown himself into raising as much money as possible for the MNDA. By the end of this year he will have raised more then 30,000 after trekking to Macchu Picchu ,climbing Kilimanjaro , running half marathons and organizing numerous charity events. His brother John Collins has nominated Pete to carry the Olympic flame with the Lloyds TSB in London 2012 Olympic relay-his brother writes .....he is simply the best man I know who`d carry the torch with such pride and to my mind, be so deserving of the honour . I will be keeping my fingers crossed for you Peter that you make the final selection-your dad would have been so very proud of you I`am sure ! You can keep up with his exploits via twitter @peteandceMND
or donate www.justgiving.com/peteandceliamnd/3
Pete has promised to send us photograph when he reaches the summit ! [proudly wearing his MND awareness band ]
A huge thank you to everyone who takes the time and trouble to send in a photograph for our blog and who then go on to post photographs wearing their MND bands onto facebook !!
Thank you to Diane and hubby pictured above-I can`t make out what you are watching on telly but goes to show if you are shy- then the photograph you send in doesn`t have to show your face/s-be inventive !! and to Karen and Daniel pictured below thank you for this lovely photograph of you both-your support is much appreciated x
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Thursday, 8 September 2011
Alistair The Optimist - Channel 5 - Sept 11
Alistair The Optimist gave an interview today for channel 5- I thought he did brilliantly, he had mentioned on face book that he was more than a little nervous about it -I must say he came across really well-it`s great that people like Alistair are willing to go on television and talk openly
about their illness to help raise awareness of this dreadful disease. Alistair`s album should be out just before Christmas [ message to hubby - please take note ! x ]
Nobody guessed correctly in our travelling bands competition ! Well , not fully anyway -Maura you were the closest [ Linda -you knew but didn`t comment ]
The clues were all in the photographs -A Spanish flag was flying , The artist was Salvador Dali and the location Marbella !
Saturday, 3 September 2011
Win A free MND awareness band !
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