Fighting Progressive Bulbar Palsy
A type of Lou Gehrig's Disease.
MND - Motor Neurone Disease
Friday, 29 April 2011
Killing For Company - Andy's New Guitar
I`am sitting next to Andrew on the settee , a few moments ago he was scrolling through his I pad when I spotted this video and asked Andrew if he could download it onto the blog for me -which he has just done , The I pad is a fabulous gadget - it acts as Andrews communication aid- it has a small keyboard ,display screen and synthesised speech-you type a sentence and press a button for the machine to speak the message you type . It also allows Andrew, internet access to all his favourite sites including facebook and myspace, and he can also download and read a book if he so wishes ! I`am now going to hand you over to Andrew -he is going to write a little bit of information about the video,
Hi all ,I met all the band KFC onThe Alarm tour 2010 and built up a friendship with their lead guitarist Andy "Glam" Williams as I used to help him hook up his amp ready for starting off the gigs, it was on the last gig of the tour we all got up to play on the encore and I passed Andy Mike's custom LHS white telecaster that I built for Mike for the tour Andy enjoyed playing it so much he commissioned me to build one for himself .
So here`s the footage he recorded and sent me to hear it in it's full glory, Hope you enjoy it as much as I do.
Andy.
Tuesday, 26 April 2011
A Loving Tribute
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http://www.northanset.co.uk/news/local/corby/a_loving_tribute_to_dying_father_1_2619272 This is another young family devastated by this dreadful disease and a reason to free the world of M.N.D. From all of Andrews family -our heartfelt condolences , we are thinking of you .
Sunday, 24 April 2011
The Start of Prestatyn car show - and car rides for MND
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For those of you who don`t know Prestatyn, the Edwardian vicarage is set in a picturesque woodland garden in the centre of town , I think the vision Ann had at that time was of a country house setting rather like a Agatha Christie / Miss Marple type film with all the pre- 1939 cars parked up under the trees and driveway ! She obtained a grant from the Prestatyn Town council and contacted the local car club- Clwyd Pratical classics , setting up a meeting over afternoon tea they agreed they would like to help and support the event and still do today ! The first show was a modest affair with just 50 cars compared to the 300 who took part last year ! The grant was used to hire a marquee and all the car owners were treated to a light lunch with all of Ann`s team of helpers dressed in navy blazers for a corporate look-retired manageress of Manweb- Ann Jones, Debbie Rawlins carpet shop owner , Elizabeth Quinlan from the china shop and Norma and Ken Radcliffe from the sweet shop , Joyce [a high street customer ] and Frank Cook a retired police officer was the official photographer.Chatting with Ann and Tim it was lovely to hear the memories they had of that day !
Picture the scene a lovely sunny day, a jazz band playing , face painters and childrens entertainer, craft and produce stalls- when it was decided on a parade of classic cars around the town at midday , the Mayor to travel in a Daimler Jag once owned by the Marques of Angelsey and the chair of the Business Association in an open top Lanchester with numerous dignitories assigned to eye catching classic`s.
The chair of the business Association was the lovely Lyn Bedway the glamorous manageress of Ethel Austin- Lyn arrived immaculately dressed the morning of the show sporting the most beautiful picture hat and stunning smile that lasted all day ! Ann says when she thinks back she thinks warmly of all the wonderful team of volunteers , who are still with her today and of all the good humour and laughter , local people pulling together at a community event and enjoying themselves [ a lot of whom have helped us with our fundraising for MND today ] but her lasting memory has to be Lyn and her smile sitting in the back of the Lanchester bombing passed the entrance of the marquee as Ann looked up from serving lunch-holding on to her wonderful hat for dear life- Fabulous !
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A 1937 Lanchester- L14
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Sunday, 17 April 2011
Meet the wonderful Jenny Green !!
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with 65 of the top international Dragon crews taking part ,Regatta Royal is a challenging race for any competitor, but for Jenny , completing all races in the Regatta was a huge task. Jenny sailed alongside her husband Malcolm and said fatigue and weakness were the biggest hurdles and getting annoyed about the things she cannot do anymore or that took so much longer didn`t help either !! She says....It was difficult moving around the boat and balancing on the side without much help from the legs-but when racing I can feel almost normal- there is no time for doom and gloom , as all the concentration went on the competition !
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Sunday, 10 April 2011
Renovation
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Sunday, 3 April 2011
Travelling M.N.D. bands go posh ?
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Last year I watched a really interesting series on the the television documenting the restoration of the Savoy Hotel in London.The Savoy was the first luxury hotel to be built in Britain and is situated on the Strand in the city of Westminster in central London-it took five years to build, finally opening its doors on the 6th of August 1889 .It was built by impresario Richard Carte with the profits from his Gilbert and Sullivan operas ,it caused a great sensation at that time as it was the first hotel in London to be lit by electricity, it had the first electric lift and later became the first hotel to provide bathrooms en suite
Artists Whistler and Monet both used views from the hotels windows for their work. Oscar Wilde with his friend Lord Alfred Douglas, The Prince of Wales and his coterie were all frequent visitors-The likes of Noel Coward ,George Gershwin,George Bernard Shaw and H.G.Wells frequented the American Bar.
Art Deco and Jazz and the Savoy were made for each other-The iconic stainless-steel sign over the Savoy court was erected in 1929.Top jazz musicians from America came to play and a hydraulic lift system installed to raise the dance floor and turn it into a stage for cabaret acts.The stars loved the Savoy-England`s own Vivien Leigh was first introduced to her future husband Lawrence Olivier in the hotel`s front hall - From America Al Jolson, Errol Flynn and Katherine Hepburn,From France Josephine Baker and Coco Channel, Winston Churchill frequently had lunch with his cabinet at the hotel during WW2 and attended his Savoy club, The other club ,until his death in 1965.Once peace was declared The Savoy quickly regained its air of glamour and luxury ,Princess Elizabeth was first seen with Lt Philip Mountbatton in public at a Savoy reception.
The new Elizabethan age saw a new generation of actors ,films ,stars and politicians.
Elizabeth Taylor [honeymooned there ]Sophia Loren ,Marilyn Munroe.The Savoy swung into the sixties with Louis Armstrong, Marlon Brando,and Jane Fonda to the Beatles and Bob Dylan !
In 2007 began the most extensive restoration that would re-launch The Savoy in 2010,
The hotel conducted a sale of 3,000 of its famous furnishings and memorabilia -which is something I personally felt quite sad about, for me [if I ever got the opportunity that is ]of going to the Savoy for afternoon tea ,the joy of being there and soaking up the atmosphere-wondering who had sat in that exact same spot-parked their bottom in that same chair and used the same china would be all part of the enjoyment for me ![ romantic old fool that I`am ] Having said that-the glass dome which was covered during WW2 was never uncovered until the renovation -The rooms have been modernised but decorated in period styles - I couldn`t help but feel it had been spoilt- once you had walked through the doors you could have been at any top class hotel anywhere in the world- but I guess you need to move with the times-I really am a bit of a grumpy bum - I hate change !
The hotel checked in its first guest- Actor and broadcaster Stephen Fry at 10.10am on the 10/10/10 after a refurbishment cost of 220 million pounds [ 110 m over budget]
Butler service was re-introduced .I would still love to stay the night at this hotel-who wouldn`t ? Sigh ! Our travelling bands go to the nicest of places !
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