Fighting Progressive Bulbar Palsy
A type of Lou Gehrig's Disease.
MND - Motor Neurone Disease
Tuesday, 16 August 2011
In The Wake - Alistair The Optimist
Former teacher Alistair was diagnosed last summer with MND .He is married to Alice and has two children Freya aged 3 and Finn aged 7-He writes MND is killing me and it will gradually leave me unable to walk , talk and breathe-I`ll miss out on my kids growing up-There are things that I will no longer be able to do like record and play music I love-Time is running out-I need to finish an album with my band before my muscles stop working-I need this legacy for my family and friends.
This video is of Alistair [on the drums ] rehearsing with his band- and as he puts it - it is warts `n all !!
He apologizes for looking bored in the video but he was in fact totally knackered !! this song they are hoping to record this coming Friday- I love it !! I will definitely go out and buy the album-you can catch up with Alistair at ...... alistairtheoptimist.org/?page
Alistair states- drumming and playing in bands are things I have always enjoyed [ Hmm ? remind you of someone else ?] there is something magical about creating , recording and performing music especially when its with good friends . Good luck with the album Alistair-I`am sure it will be a huge success !
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8 comments:
Thanks for pointing me in the direction of Alistair and his music - another absolute trooper. xxxx
Yep, Snap Diane, really enjoyed that music. An addition to the wish list. Off to visit that link. Reminds me how very lucky we all are xx
Great sound! Best of luck, Alistair.
Best wishes for your success, Alistair!
This group is good. I am hoping Alistair will be able to hang on and enjoy life with his family for a long time. I know a few people with similar diseases and they are defying the odds.
Wonderful! Alistair is another who is a great role model for us out here. Thanks for sharing this post Janet.
I know I should know this by now, after following John's and your blogs for years, but what does knackered mean?? Tired??? Now I must go back and listen to this video you posted for us.
xx-cassie
I enjoyed the music as well, quite soothing.
Gill in Canada
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